Rare/Undiagnosed Disease Information

Link to National Organization for Rare Disease (NORD)’s fact sheet here.

International/National Organization Links

National Organization for Rare Disease: https://rarediseases.org

Global Genes Project: https://globalgenes.org

Syndromes without a Name: http://swanusa.org

Rare & Undiagnosed Network: https://rareundiagnosed.org

Medical/Research Links

Undiagnosed Diseases Network: https://undiagnosed.hms.harvard.edu

My Gene2 Project: https://mygene2.org/MyGene2/

Precision Medicine Institute at UAB: https://www.uab.edu/medicine/pmi/

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